
I didn't get to comment on as many blogs as I hoped and planned to. Life is not what I ever imagined and I'm having a difficult time adjusting and reprioritizing. I can't wrap my head around my current situation.
I fear being less than who I dreamed I would be.
Except... I am.
I am far less than my dreams.
Do I start over with new ones?
Would it matter? Doctors keep saying I'll be gone before 2030, absolutely no matter what, that I will never turn 50. Seems like a threat, because they won't even offer hope or space for a miracle or anything. I don't know what to do with that.
Just live each day?
Just try to spend as much time with my husband as possible?
I love him. I'm grateful for him. I absolutely don't want to exist without him by my side.
I barely read or write anymore.
Didn't even manage to make many blog comments because I didn't prioritize time for it.
So, I guess my fear now is that I'll write instead of spending moments with my husband. And I fall apart when we're watching tv together (the only activity he's interested in at all right now) and he starts playing on his phone. And I'm excluded. So now I'm not living my dream, I'm not reading or writing, and we're not actually doing something together. And I don't like myself. And I don't know WHAT NOW.
What goal do I live for?
Who am I?
Do I just wait for death?
Do I demand more of myself?
And to top all of this, my wrist HURTS. Just this month of blogging, half done on my phone, has my wrist and fingers feeling like a rock 🪨 smashed them.
(A problem that started in Jan 2024, when the stroke impacted my right arm, and then got worse when it was SLAMMED hard, with all the might of a tech and nurse, as they tried to shove me into a tube and I got stuck.) So now writing, something I live/d for and that makes me feel alive, happy, and purposeful... now it hurts. Like a punishment, like maybe I'm not supposed to be me. Maybe I'm just supposed to be John's wife. A great gig, granted, and one I am grateful and proud to have. But am I still more? Am I me?
Or am I already gone?
I have ALWAYS said that if I can't write, if I'm not writing, that I am dead.
I hold to that.
Right now, I'm alive, but I'm barely living.
I am not who I was.
Rejections, failures, lack of talent or ability?
Those were never my big fears.
Success... slightly, because I've dealt with stalkers before (non-fame reasons) and I don't have it in me to go through that again.
I don't know.
When I think about what I most want, it's to traditional publish a novel under my name.
Preferably the Lenore story I've been working on for a few years.
A traditional publisher wouldn't accept it because it would ABSOLUTELY be a banned book in America right now.
And if you speed round ask me what I most want to do with my life, with my time left, that's what I'll immediately say.
And then pause.
And say I actually want to spend every possible moment with my husband. Who the doctors keep saying will be gone in four years, UNLESS he gets his blood sugar under control. (He gets an unless. But every time he gets close, something happens and it gets messed up. Like they change his meds. Or now he can't do physical activities. But we're not supposed to consider the scientific reasons. We're supposed to just FIGURE IT OUT. Other people magically master this, why can't we?
I'M A FUCKING FAILURE.)
See... and then I don't want to write. Don't feel like I should.
Don't know who I am.
I have no idea who I am.
I don't think I've been me since 1998.
All my social media. "JamieWriter."
That's how I define myself.
Sure sounds like someone who should spend most of her time writing. Or at least some. Sounds like she'd fight for it.
And she'd protest libraries being shutdown. Probably more than just letters and mentions on her blog.
Maladjusted.
See... it was funny when I said it before. My mom always said I was strange.
Maybe stranger than anyone knows. Even me.
I WANT to WANT to write more than anything. And I do... sorta. I want my actions to reflect that.
But, ah... what my actions and choices prove are that my true desires are to spend every possible moment with my husband, and to experience as little physically pain as possible. And that is the absolute truth.
Please, I need to fit writing in there. My soul wants NEEDS that.
But, there are 9 other examples.
Maybe this meme graphic will help someone going through less of an existential crisis.
https://www.facebook.com/share/1BbR9PRdbo/
I want to end this on an upbeat note. Because one thing I CAN do is support and appreciate other authors. Vikki is turning 60 and having a book release milestone. So please check that Facebook post out! Or her Urban Fantasy on Amazon.
I'm sorry for all the hard, Jamie. I'm glad you participated in the A-to-Z challenge and got 26 posts written. You ARE a writer, and I hope you find ways to keep at it.
ReplyDeleteAnyone who completes 26 posts, especially writing mainly on a phone is most certainly a writer - sorry it is tough at the moment but the meme about rejected writings certainly inspired me and it should you - keep on keeping on Jamie...
ReplyDeleteI'm so sorry you're going through this hard time, Jamie. You know, the doctors could be wrong and you'll outlive us all -- or someone who seems perfectly healthy can drop dead tomorrow, without having figured out who they are or what they want.
ReplyDeleteOn the writing side: I don't know your circumstances, but you can try speech-to-text to keep on writing when it hurts too much to type. There are free apps that work well and everyone's favourite Dragon has a free trial period. You can also try publishers not in North America to publish your book if you don't want to go indie (with Draft2Digital you can get into any digital store and library system, they also have a print on demand feature).
All the best.
Ronel visiting for Reflections for A to Z Blogging Challenge 2025
Having been through a long period where my wrists didnt work, and I couldnt type for more than a few minutes, I can empathise with the loss of confidence and feelings of absolute uselessness, especially when you dream of doing a decent job of anything and it just doesnt happen. And you have a whole load more going on than I did. I bet your husband is scared too, what should he do about you? How can he help, or is he too useless to do so (he thinks).
ReplyDeleteMy brother (disabled) recommended doing a little. Then resting. Then doing a little of something else. And repeat.
I tried using speech-to-text but I needed to correct so much afterwards it was easier to type my own stuff to correct! Also, I discovered that I can't think of what I'm going to say next when I'm speaking, whereas when typing, the typing happens while I'm thinking of what happens next....
Enough from me, glad you thought to combine your Reflections with IWSG. Well done on both. And you made it from A to Z...
Jemima @jemimapett.com
That is a lot to deal with. First, doctors are wrong. And they suck. Been through that with my mother. Second, it is your life. You can spend time with your husband and do what brings you joy. Third, every day is a gift. Imagine you wake up to giant present at the end of your bed. You open it up and see that God has gifted you another beautiful day, one full of possibilities. Greet each morning like that and your day will be more fulfilling.
ReplyDelete